Other
National Plan for Epilepsy Act
This legislation directs the Department of Health and Human Services to create and maintain a national plan to coordinate epilepsy research, prevention, and medical care across all federal agencies. It establishes an advisory council of patients, family caregivers, medical experts, and agency officials to assess federal programs, track government spending, and recommend ways to expand treatment access. The bill also requires federal agencies to share epilepsy data and submit annual progress reports to Congress through 2035 to address disparities in care and reduce seizure-related deaths.
People affected—While congressional findings cite approximately 3,456,000 adults and children with epilepsy in the United States, the operative provisions govern federal agency coordination, reporting, and advisory council operations rather than establishing direct individual benefit or regulatory counts.
Fiscal magnitude—no CBO estimate published
Reach20provisional · pending reviewrigor: heuristic llm
What this bill touches.
Public R&D+20Role of government+22
Who it helps · who it burdens.
Who it helps
- Individuals living with epilepsy and family caregiversReceive formal federal coordination of research, care, and early diagnosis programs under the National Plan, alongside dedicated advisory seats on the federal Advisory Council. (Sec. 3(320C)(a)(2), Sec. 3(320C)(c)(2)(B))
- Epilepsy researchers, medical providers, and nonprofit organizationsGain designated representation on the federal Advisory Council, coordinated federal research priorities, and participation in recurring biennial inter-organizational epilepsy research meetings. (Sec. 3(320C)(a)(2)(C), Sec. 3(320C)(c)(2)(B), Sec. 3(320C)(c)(3)(B))
Who it burdens
- Department of Health and Human ServicesDirects the Secretary to establish and manage a National Plan for Epilepsy, convene an Advisory Council, conduct annual progress evaluations, and submit annual reports to Congress through 2035. (Sec. 3(320C)(a)-(d))
- Federal agencies with epilepsy-related dataRequires federal departments and agencies inside and outside HHS that possess epilepsy data to share that data with the Secretary to support national reporting and planning. (Sec. 3(320C)(e))